October 21, 2010

Sorry I haven't updated in forever....it has been crazy here, but not in a really bad way.

Fred is doing great. We went to Mayo Clinic for a follow-up in late August and Fred is still in REMISSION!!!!

We do not have to go back again until February 2011, unless problems should arise. We will keep our fingers crossed that all goes well.

Friday, February 26, 2010

We were back in Jacksonville today for Fred's 6 month follow up with Dr. Solberg. Gladly we can say he is still in remission. His blood work looked good. We follow up again in 6 more months.

Friday, November 27, 2009

Hope everyone had a great Thanksgiving!

Late Wednesday afternoon we saw the pulmonologist to go over Fred's CT chest scan. White there has been significant improvement in the scarring of the lungs from the pneumonia and will never be 100% clean the lungs are in good shape. Of major significance is that the lymph nodes in the chest remained the same size. This indicates that the leukemia has NOT started to return and is staying away for now.

Wednesday, November 25, 2009

Fred and I are back at Mayo Clinic for follow up testing and doctor appointments. Last night Fred did a sleep study at Mayo (so I was blessed with a wonderful night of sleep at the hotel). This morning we say the sleep disorder doctor, Fred has mild sleep apnea and they are putting him on a C-PAP with low oxygen for 6 weeks and we will come back to see if this has helped him with the tiredness. If this doesn't help we will take the next step...whatever that is. Fred just got done having a CT chest scan for his follow-up from his pneumonia. We are waiting now for his 2:30 pm appointment for some breathing tests before we see the pulmonologist at 4:30 pm. It is raining here so might as well spend it at the clinic all day.

Will keep you posted....HAPPY THANKSGIVING TO ALL OUR FAMILY AND FRIENDS!

October 11, 2009

It has been a while since I updated the post. Everything has been going well.

Fred has been having trouble with sleeping and always feeling exhausted. Fred and I went to Mayo the end of September for Fred to see a sleep disorder doctor which was recommended by Dr. Solberg. It was decided to do further testing so we will be heading up there right before Thanksgiving for him to have further testing done and also a recheck from his pneumonia that he had in April. He will do a sleep study, have a CT scan, med lab work done and see Dr. Aduen, his pulmonologist. Sometime before we head up Fred will have blood work done here and the results will be send to Dr. Solberg.

We were very fortunate to go on a nice vacation to Maui and got to relax, which was truly needed. Other than the sleep issue and the 6 hour time difference, Fred did well. He did one business trip and again did well.

We are just keeping our fingers and toes crossed.

Monday, August 24, 2009

We have waited a year and a half for some good news....we got it. There is "no leukemia in Fred's marrow at all". His blood counts are coming up. He does not have to have blood work done until November and if everything goes all right he does not have to see Dr. Solberg until February.

Fred is always going to be immune suppressed, which means he has to take his usual precautions. We also know that his CLL will come back, but the longer he is in remission, the better.

The pathologist did not feel that he needed to run any further tests at this time on the MDS (myeledysplastic syndrome)due to the normal results he obtained in the marrow tests. So at this time that is not a concern.

We both walked away from Mayo today a little stunned cause we haven't heard such good news for so long we did not know what to say. We do want to thank everyone for their prayers and thoughtfulness through this last year and a half...you have no idea how much it has helped.

Sunday, August 23, 2009

Well we are back in Jacksonville. Tomorrow we find out the results of Fred's bone marrow biopsy from last Monday. Keep your fingers crossed for good news.